Clear information and practical help for life with FND.

Functional Neurological Disorder is real. It can be confusing, frightening and different for each person, but diagnosis is not the end of the story. Understanding the condition is often the first step toward better support, better planning and a life that still has direction.

Start with FND basics Find support options

When to get urgent medical help

FND symptoms can look like other medical emergencies. If someone has new stroke-like symptoms, a first seizure, serious injury, chest pain, breathing difficulty, sudden severe headache, or symptoms that are very different from their usual pattern, call 999 or go to A&E. For urgent but non-emergency advice in the UK, use NHS 111.

What this site helps with

Short, plain-English pages for people newly diagnosed with FND, people waiting for clearer answers, family members, carers and professionals who want a reliable starting point.

Understand FND

What FND is, why normal scans do not mean “nothing is wrong”, and how diagnosis should be made from positive clinical signs.

Recognise patterns

FND may involve weakness, tremor, functional seizures, sensory changes, speech issues, dizziness, fatigue, pain and cognitive symptoms.

Explore symptoms

Compare treatments

Learn how specialist physiotherapy, occupational therapy, psychological therapy, speech therapy and wider rehabilitation can fit together.

See treatment

Plan daily life

Practical ways to pace activity, explain FND, reduce flare impact, work with services and keep hold of identity after diagnosis.

Living advice

Life after diagnosis

A diagnosis can bring grief, relief, uncertainty or all three at once. It can also create a practical route forward: better explanations, better referrals, better self-management and contact with people who understand.

Some people improve quickly once they understand what is happening and start the right rehabilitation. Some improve more slowly. Some continue to live with symptoms long term. The aim is not to pretend FND is easy; it is to make sure people are believed, informed and supported to reduce its impact wherever possible.

Minimise daily impact Open community

SeizeControl, developed by FND Connect CIC

SeizeControl is a structured seizure tracking and insight workspace for people who need a clearer record of episodes, risk windows, medication context, wearable signals and review notes.

Built like medical software rather than a lifestyle diary, SeizeControl supports episode logging, longitudinal review, forecasting, cycle and weather context, HealthKit imports, medication tracking and consultation summaries.

Learn about SeizeControl Open SeizeControl.uk

Support options

FND-specific charities and resources can help with information, peer support, signposting and advocacy. Start with the directory if you are looking for organisations outside your clinical team.

FND Action

UK charity offering FND information, support resources, awareness work and signposting.

Email: contact@fndaction.org.uk Web: fndaction.org.uk

FND Hope UK

Patient advocacy charity with education, events, peer support and UK support resources.

Email: fndhopeuk@fndhope.org Web: FND Hope UK

Neurosymptoms FND Guide

A detailed patient guide used widely by clinicians, with information by symptom type.

Web: neurosymptoms.org

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