FND Action
UK charityInformationSupport
FND Action is a UK charity dedicated to supporting people diagnosed with FND and improving understanding, recognition and care.
FND support options
A practical directory of FND-specific charities, peer support, educational resources and clinical routes. Availability changes, so always check each organisation’s website before relying on meeting times or eligibility.
Urgent help
Call 999 for suspected stroke, a first seizure, serious injury, breathing difficulty, chest pain, sudden severe headache, or symptoms that are new, severe or very different from your usual pattern. Use NHS 111 for urgent but non-emergency medical advice in the UK. If you are at risk of harming yourself or cannot stay safe, call 999, go to A&E, or contact Samaritans on 116 123.
FND charities and peer support
These organisations provide information, peer support, signposting, awareness work or advocacy for people affected by FND.
FND Hope UK
UK charityPeer supportEvents
FND Hope UK is part of the wider FND Hope network, providing education, advocacy, events, peer support groups and UK support service links.
FND Dimensions
UK charityPeer groupsInformation
FND Dimensions aims to develop peer support groups across the UK, online and face to face, to reduce isolation and connect people who understand FND.
FND FrieNDs
South West EnglandMeet-upsFacebook group
FND FrieNDs supports people in the South West of England through meet-ups, facilitators, local information and signposting.
FND Matters NI
Northern IrelandPeer supportCounselling
FND Matters NI raises awareness and provides peer support, information and counselling services for people affected by FND in Northern Ireland.
FND North
LancashireCommunityAdvocacy
FND North is a non-profit organisation based in Lancashire, offering community support, signposting, advocacy and awareness work.
Information and clinical resources
These resources can help people understand FND and can also be useful when speaking with clinicians, schools, employers or family members.
SeizeControl
Seizure tracking and insight workspace developed by FND Connect CIC, with structured episode logging, forecasts, medication context, wearable signals and consultation summaries.
NHS Inform: FND
NHS Inform’s patient page explains FND, symptom types, diagnosis, treatments and support resources.
Neurosymptoms FND Guide
A detailed patient guide written by FND specialists, with separate pages for many symptom types and treatment approaches.
My FND app
A secure app designed to help people learn about FND symptoms, track them and access management advice.
UK FND Network
A UK multidisciplinary hub with links to resources, professional groups and FND information.
AHP FND Networking Group
A network of UK NHS allied health professionals sharing free resources and examples of good FND clinical practice.
King's College Hospital FND Clinic
Specialist South East London FND neurology assessment clinic. Referrals are limited by geography and usually made through neurology or psychiatry.
Practical non-FND-specific support
FND can affect money, work, benefits, relationships and mental health. These organisations are not FND-specific, but can be useful alongside medical care.
Citizens Advice
Benefits, work, housing, debt and rights advice.
citizensadvice.org.ukScope
Disability information, helpline and support in England and Wales.
scope.org.ukTurn2us
Benefits calculator and grants search.
turn2us.org.ukSamaritans
Emotional support at any time on 116 123.
samaritans.org