FND and Work: Reasonable Adjustments, Sick Leave and Access to Work

What to ask for, what your employer should consider, how sick leave works, and where to get help when FND starts affecting your job.

A worker and manager reviewing a workplace adjustment plan at a desk

Quick answer: if FND has a substantial and long-term effect on day-to-day activities, it may count as a disability at work. Employers in Great Britain must consider reasonable adjustments so disabled workers are not put at a substantial disadvantage. The best request links each adjustment to a specific work barrier.

Is FND a disability at work?

FND is not automatically treated the same way for every person. The legal question is impact. GOV.UK says a person is disabled under the Equality Act 2010 if they have a physical or mental impairment with a substantial and long-term negative effect on normal day-to-day activities. "Substantial" means more than minor or trivial, and "long-term" usually means 12 months or more. The Equality Act does not apply to Northern Ireland, so people in Northern Ireland should use NI-specific advice routes.

FND can affect work through weakness, tremor, gait problems, functional seizures, fatigue, pain, dizziness, speech symptoms, cognitive symptoms, sensory overload, dissociation, migraine, anxiety around episodes, or recovery time after activity. The diagnosis matters, but the adjustment conversation should focus on the barrier: what part of the job is unsafe, unreliable, slower, inaccessible or triggering?

Examples include getting to work, standing at a counter, using stairs, handling hot equipment, concentrating in long meetings, managing screen time, answering phones during speech symptoms, staying safe after functional seizures, working under intense sensory load, or returning after a flare.

Should you tell your employer?

You do not have to tell an employer everything about your health. Acas says nobody has to tell an employer or potential employer that they are disabled. But once you do tell them, the employer has a legal responsibility to support you. In practice, an employer can only make useful adjustments if they understand the work barriers.

You can keep the explanation short. You might say:

I have Functional Neurological Disorder, a condition that affects how my nervous system functions. My symptoms are real and can fluctuate. At work it affects [attendance/travel/mobility/speech/concentration/safety]. I am asking for adjustments so I can work as safely and reliably as possible.

You do not need to share every medical detail. Share what helps the employer act: the functional impact, risk, adjustments requested, whether the issue is temporary or long term, and when to review the plan.

Reasonable adjustments that may help with FND

GOV.UK gives examples of reasonable adjustments such as changing recruitment processes, doing things another way, physical workplace changes, working somewhere else, changing equipment, and phased return with flexible hours or part-time working. For FND, useful adjustments are often practical and specific.

Energy and flare control

  • Flexible start and finish times
  • Shorter shifts or reduced hours while rebuilding
  • Scheduled rest breaks before symptoms escalate
  • Phased return after sickness absence
  • Hybrid or home working where the role allows

Safety and access

  • Ground-floor working or accessible workstation
  • Parking closer to the entrance
  • Reduced lone working if episodes affect awareness
  • Safe space after seizures, falls or dissociation
  • Adjusted duties around ladders, machinery, driving, heat or sharp tools

Cognitive and communication support

  • Written instructions after verbal briefings
  • Meeting notes, agendas and fewer back-to-back calls
  • Extra processing time for complex tasks
  • Alternative communication during speech symptoms
  • Reduced interruption for focused work

Sensory and workload changes

  • Quieter workspace or noise-reducing equipment
  • Lighting changes or screen filters
  • Workload prioritisation during flares
  • More predictable rota patterns
  • Review points rather than open-ended pressure

Not every adjustment will be reasonable in every job. A hospital ward, school, warehouse, call centre, office and self-employed role all have different constraints. The strongest request explains the barrier and offers a realistic way to reduce it.

A simple adjustment request template

Put the request in writing where possible. This gives everyone a record and helps avoid vague promises. Acas says requests can be made in writing, in a meeting, or through a formal workplace process.

Subject: Request for reasonable adjustments

I am asking for reasonable adjustments because my FND symptoms are affecting my ability to work safely and reliably. The main barriers are [briefly list barriers: for example travel, fatigue, functional seizures, mobility, speech, concentration].

The adjustments I would like to discuss are [list each adjustment]. These would help because [connect each request to the barrier].

I would also be happy to discuss occupational health, a review date, Access to Work, or a written adjustment plan. Please confirm the agreed next steps in writing.

Ask for a review date. FND can change, and an adjustment that works during a flare may need to be adapted later.

Occupational health and evidence

An employer may suggest occupational health. That can be useful if the report focuses on functional barriers and practical adjustments. Before the referral, ask what questions the employer is sending. If the questions are vague, suggest clearer ones:

  • What symptoms currently affect the employee's work tasks, attendance, travel, mobility, concentration or safety?
  • What adjustments would reduce risk or make work more reliable?
  • Would a phased return, altered hours, home working or adjusted duties be appropriate?
  • How should disability-related absence or symptom flares be reviewed?
  • When should the adjustments be reviewed?

Medical evidence can come from a GP, neurologist, physiotherapist, occupational therapist, psychologist, speech and language therapist, FND clinic or mental health professional. A useful letter does not only say "has FND"; it describes the work impact and support needed.

Sick leave, fit notes and phased return

Employees can take sick leave if they are ill. GOV.UK says employees need proof if they are ill for more than 7 days. For sickness lasting more than 7 days in a row, a fit note may say the person is either "not fit for work" or "may be fit for work". If it says "may be fit for work", the employer should discuss changes that might help the employee return, such as different hours or tasks.

Fit notes can come from a GP or hospital doctor, registered nurse, occupational therapist, pharmacist or physiotherapist. That is useful for FND because a physiotherapist or occupational therapist may understand the functional work barrier more clearly than a short GP appointment can capture.

Statutory Sick Pay is paid by the employer if you are eligible. GOV.UK currently lists SSP as up to £123.25 per week for up to 28 weeks, and your contract may provide occupational sick pay above the statutory minimum.

If absence is disability-related, Acas says reasonable adjustments might include changing absence trigger points, increasing the number of absences before a review, or recording disability-related sickness absence separately. This is not a free pass for unlimited absence, but it does mean the employer should consider whether the normal absence process puts you at a disadvantage because of disability.

Access to Work

Access to Work can help you get or stay in work if you have a physical or mental health condition or disability. GOV.UK says support can include a grant for practical support, help managing mental health at work, and communication support at job interviews.

For FND, Access to Work may be relevant if you need specialist equipment, assistive software, a support worker, a job coach, a travel buddy, help with travel to work if you cannot use public transport, vehicle adaptations, or changes related to a home workplace. It may also signpost mental health support for staying in work.

Access to Work is not a replacement for reasonable adjustments. GOV.UK says it will not pay for reasonable adjustments, because those are changes your employer must legally make. The two routes can sit alongside each other: the employer considers reasonable adjustments, and Access to Work may help where extra funded support is needed.

If you are in Northern Ireland, GOV.UK points to separate Northern Ireland employment and Access to Work routes, so use nidirect rather than assuming the Great Britain process applies.

Related guide

PIP, Adult Disability Payment, Blue Badge, Motability and benefits calculators are covered in the companion benefits guide.

Read the benefits guide

If work is becoming a problem

If you are being pressured to return too quickly, criticised for disability-related absence, refused adjustments, or pushed toward resignation, slow the process down and get advice before making irreversible decisions.

  • Keep a timeline of symptoms at work, adjustment requests, meetings, decisions, absence dates and emails.
  • Ask for decisions in writing, especially if an adjustment is refused.
  • If an adjustment is refused, ask what alternative would address the same barrier.
  • Ask whether occupational health, a union representative, HR, a disability passport or a return-to-work plan can be involved.
  • Contact Acas, Citizens Advice, a union or an employment adviser before resigning, signing an agreement or missing a deadline.

GOV.UK says it is against the law for employers to discriminate because of disability in areas including application forms, interviews, terms of employment, promotion, dismissal, redundancy, discipline and grievances. It also says an employer has to make reasonable adjustments to avoid you being put at a disadvantage compared with non-disabled people.

Benefits if work is limited or stops

If FND limits how much work you can do, check benefits early rather than waiting until savings or sick pay are gone. Universal Credit may include an extra amount if a health condition or disability limits capability for work. New Style Employment and Support Allowance may be possible depending on your National Insurance record, and GOV.UK says it can be claimed on its own or at the same time as Universal Credit, although Universal Credit is reduced by New Style ESA received.

You cannot get New Style ESA while receiving Statutory Sick Pay, but GOV.UK says you can apply up to 3 months before SSP ends. PIP is separate from capability-for-work benefits and can be paid whether or not you are working if you meet the PIP rules.

What to ask your clinician when work is affected

Bring work problems into appointments. Do not just say "work is hard". Ask specific questions:

  • Which symptoms should make me stop work immediately or seek urgent help?
  • Would neurophysiotherapy, occupational therapy, psychological therapy or speech and language therapy help with work goals?
  • Can my fit note mention a phased return, altered hours, amended duties or workplace adaptations?
  • Could you write a short letter explaining the functional work impact and adjustments that may help?
  • Should driving, lone working, machinery, lifting, heat, stairs or travel be reviewed for safety?

Occupational therapists can be particularly useful for FND because they look at daily activities, work, fatigue, cognitive barriers, aids, adaptations and graded return. Neurosymptoms notes that occupational therapists can help identify work or study impact, integrate symptom management strategies into tasks, liaise with employers or education providers, advise on reasonable adjustments and consider Access to Work.

Frequently asked questions

Should I tell my employer I have FND?

You do not have to share every detail. But if you need adjustments, the employer needs enough information to understand the work barrier and support needed. Keep it practical and focused on function.

What reasonable adjustments can help with FND?

Common options include flexible hours, phased return, rest breaks, hybrid work, written instructions, safer duties, sensory changes, accessible workspaces, travel support, adjusted absence triggers and an agreed episode plan.

Can I be off sick with FND?

Yes, if you are not well enough to work. For sickness longer than 7 days in a row, you usually need a fit note. A fit note can also support a return with changes if you may be fit for work with adjustments.

Can I claim PIP if I am still working?

Yes, PIP can be paid while working if you meet the criteria. It is based on daily living and mobility impact, not whether you have a job.

What if my employer refuses adjustments?

Ask for reasons in writing, suggest alternatives, keep records and get advice from Acas, a union, Citizens Advice or an employment adviser. Do this before resigning or missing tribunal-related deadlines.

Can Access to Work pay for taxis?

Access to Work can help with travel costs if you cannot use public transport because of your disability or health condition. Whether it applies depends on your needs and the scheme decision.

Sources and further reading