The journey to charitable status
FND Connect began as a trusted source of plain-English information and tools (including SeizeControl for daily tracking). We are now taking the next step: registering as a Charitable Incorporated Company (CIC) so we can directly help close real gaps in provision.
The gap we want to help close
Many people with FND face significant costs for equipment and therapies that fall outside standard NHS pathways or eligibility. These are often essential for safety, independence and managing fluctuating symptoms.
- Mobility aids and home adaptations
- Specialist or intensive physiotherapy and rehabilitation not routinely funded
- Assistive technology and communication aids
- Certain additional therapies for symptom management
Transparent processes developed with lived-experience input. Clear reporting on funds and support provided. Partnerships that multiply impact.
This work is in active development. We are laying foundations for CIC registration and initial fundraising.
How funds will make a difference
Mobility Aids
Wheelchairs, walking aids, home adaptations to help people stay independent and safe at home.
Specialist Therapies
Access to advanced physio, OT and rehab programmes that can reduce symptoms and improve daily life.
Assistive Tech
Communication aids, seizure detection devices and other tools that support safety and communication.
Transparency & governance
We are committed to full transparency. As we move toward CIC registration we will publish clear criteria for support, application processes developed with people who have lived experience of FND, and regular reporting on funds raised and how they are used.
We already operate under an adopted constitution and a full suite of policies, including safeguarding, data protection, conflict of interest and financial controls. You can read or download all of them on our Governance & Policies page.
How you can support this work
Make a one-off donation
Support our work directly through our JustGiving fundraising page.
Give via JustGiving →Support us for free while you shop
Shop with your usual participating retailers through easyfundraising and the retailer donates to FND Connect at zero cost to you.
Choose FND Connect on easyfundraising →Share your story
Personal accounts of the gaps in provision help demonstrate need and build the case for support.
Submit a story →Volunteer or advise
Help with the CIC application, fundraising strategy, governance or professional input.
Offer help →Partnerships
Organisations or clinicians interested in collaborating on charitable goals.
Explore partnerships →